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The purpose of this study was to learn and describe the barriers and unmet needs experienced by parents and providers providing support to children with ASD in rural communities through a life course perspective. Eight parents and eight service providers participated in the focus groups from rural counties in Illinois, United States. Parents discussed barriers to accessing and coordinating services, from ASD diagnosis to transition and future planning. Overall themes highlighted the scarcity of qualified professionals trained to work with and serve children and youth with ASD and the resourcefulness caregivers and providers need to fill the gaps in education, health care, transition, and future planning. We present recommendations shared by parents and providers on ways to improve access to services and support for families in rural areas.
